Conventional gets the thumbs down.

Canva - Closeup Photography of Thumb Tack

The results are in or so I thought so on Monday 19th September I met with the oncologist, who went through my treatment protocol.

When I asked about the results of my MRI and CT scan, she discovered they were not available to her yet. I questioned how my treatment was decided before all results were in and I was told it was irrelevant.

Irrelevant to whom, wow…alarm bells.

ancient-antique-architecture-304694

A team of individuals had decided a treatment plan without even knowing the full extent of my disease. I may be irrelevant to them but I am not irrelevant to me.

Even knowing this I decided I would still be open-minded and agreed to attend an appointment with a chemotherapy nurse who would explain procedures

My chemotherapy lesson consisted of a one hour talk with a nurse telling me I would receive the drugs Adriamycin and Cyclophosphamide every 2 weeks for 4 treatments. Seemingly the nausea is so bad I would have to inject another drug the following day to alleviate the sickness.

I would also have to have a heart echo to ensure my heart was healthy enough for the drugs. After researching the side effects of these drugs, I understood better.

Some side effects of Adriamycin and cardiac problems.

Some side effects of Cyclophosphamide.

Then for the next 8 weeks I would receive Taxol again with horrific side effects.

Here also is list of late and long-term effects of treatment.

Possible long-term side effects of chemotherapy.

I was concerned with the amount of toxicity planned for my body so I asked what I thought was a reasonable question “what are you planning on giving me to build up my immune system” the answer “nothing”

Canva - Omg, Oh My God, Texting, Social Media, Acronym

I tried to discuss diet but got little response.

You are what you eat

I left knowing 100% sure that all of the above drugs where never going to see the inside of my body.

I decided my body was a temple with a slight problem, not to be messed with.

abdomen-belly-black-and-white-735966

I received an appointment for October 5th for an Echocardiogram which I kindly cancelled. It was my birthday.

I then received another appointment for October 21st again for an Echocardiogram which I again cancelled. My intuition was telling me to keep searching for as much information as I could.

I was sent an appointment for 27th October with Oncology, which I asked to defer, I was given an appointment for November 10th.

I attended this appointment with my daughter, who was definitely subjected to emotional blackmail, which I really didn’t appreciate. The only example I can think of now is “if it was my mother, I know what I would be telling her to do”. Who wants to hear that at such a difficult time? My poor daughter.

I made it very clear at this appointment that I would not be rushed into chemotherapy. I requested another Ultrasound as I had changed my diet, started oxygen therapy and rifing (more on that later).

I specifically told the oncologist that I would be having no more mammograms, so I was shocked that when I went to the hospital on Monday 28th November 2016 I was booked in for a mammogram and ultrasound.

I refused the mammogram and because of that my ultrasound was done with a lot less love. As I was having the ultrasound, I got a scolding for refusing the mammogram. I was actually told “your tumor is too big to fit on the scan”, in such a way as if now there you go, you refused a mammogram so I am going to scare you. I actually understood why I was treated like that but don’t have to appreciate it.

The staff at the hospital were really lovely until you disagreed with them and I really can’t paint that statement any other way. That was my experience.

On the 6th January 2017 I was called to the breast clinic and my sister Marian insisted on coming with me. I was met by a group of people the surgeon, a nurse and one other.

I was told I could have my mastectomy. I declined, although my tumor was not shrinking, I felt great. I wanted time to continue on my journey with the thousands of others who have done so before me.

I asked for a 6 monthly ultrasound to monitor my progress. I was offered one last ultrasound but then the hospital would need an outcome. I asked what that meant.

I was told I would then have to start chemotherapy or have surgery.

Wow.  I do not call that caring. So, there I had it, a last ultrasound was offered. After that any future requests for an ultrasound would be refused if I didn’t do as I was told.

On Monday 20th February 2017 at 10.15 am I had that last ultrasound and my final visit to the hospital.  With the exception of receiving my results I have had no communication from the hospital since.

My greatest memory from my hospital visits was not the kindness the majority of the staff showed me but unfortunately the 3 or 4 times I was told I would die if I did not  follow the conventional route.

When I requested all reports, my final ultrasound stated signed off.

Canva - Sand, Text, Beach, Holiday, End to so many hospital visits.

OH, My final results were Invasive Ductal Carcinoma with features suggestive of grade 2 HER + ER- Node Positive.

Cancer Diagnosis Results

Fish Results Cancer Diagnosis

I would like to add the following, I am hoping it will  help you to understand me better and continue to read my blog and sign my petition.

The only person I allow to critique this blog is my daughter and on first draft her comments were as follows.

You come across a bit angry and I think you can expand more on your points. –Remember your audience may or may not know anything or everything about this subject

 Be informative and a bit gentler.

 Also, you refer to death a lot and dying. Remember some people coming to this page may have just had their diagnosis and I think you can refer to it more gently. (of course, if you think I am wrong on this point ignore it. It is probably a bit hard for me too)

Dying is a fact of course, but don’t hammer it home, not sure everyone is completely comfortable with it and the aim of your blog is to get as many people interested in your alternative thoughts. You need to be enticing not frightening.

 Respect the readers. They are the reason you are writing this so write as if you are their friend. 

(Sorry for sharing Pippa, your comments are so helpful and correct and just what I would expect from the sweet, thoughtful young lady you are. I need to share them and explain myself)

You come across a bit angry and I think you can expand more on your points. –Remember your audience may or may not know anything or everything about this subject

I am angry. I am angry for the little things like my treatment was decided prior to all my results being available. I am angry that I was almost bullied into conventional treatment and threatened with death if I didn’t follow procedures. But most of all I am angry with a TD who is trying to take away my support, my life line, a TD with power to do so. So, I apologise to you, my readers and friends for coming across angry.

As for me knowing about this subject, let’s just say I am continuously learning.

Be informative and a bit gentler.

Going forward I will try to be a bit gentler. A blogger and writer I am not and the impetus I have for doing this is to share what I have learnt and to ensure a Bill I disagree with never gets passed.

Also, you refer to death a lot and dying. Remember some people coming to this page may have just had their diagnosis and I think you can refer to it more gently. (of course, if you think I am wrong on this point ignore it. It is probably a bit hard for me too)

Dying is a fact of course, but don’t hammer it home, not sure everyone is completely comfortable with it and the aim of your blog is to get as many people interested in your alternative thoughts. You need to be enticing not frightening.

I have thought about the above a lot and even the title I choose for this blog was “Will I live or will I die”.

I apologise to anyone it offends but trust me it needs to stay as is because death is inevitable.

The question you need to ask yourself here is, does cancer have to mean death?

Look at all the advertising around death and cancer and then visit the alternative sites. Whatever route you decide forget about dying, learn about detoxing, building up your immune system and healing your sick body.

Stay positive, be happy, do not be afraid. Fear and stress are killers.

I must also correct something very important here, the aim of this blog is not to get you interested in my alternative thoughts. The aim of this blog is to ensure the bill previously mentioned never gets passed so you always have the choice to have your own alternative thoughts.

Self-healing cannot be regulated and what cures one does not cure another.

Always ask for a second opinion and give yourself time to decide your path.

Find the cure that suits you, stay positive and enjoy life, it is a journey.

So, on a positive and less angry note I have a very caring young medical doctor I go to for blood tests. He will do all tests available to him and talks to me with such joy and compassion and long may he stay that way. Thank you.

Oh, forgot to answer the last comment.

Respect the readers. They are the reason you are writing this so write as if you are their friend. 

Now you are all my friends I want to ensure you that I respect each and every one of you, even those of you who disagree with me and I promise I will never prosecute you for your choices.

So as my friends I ask you to please sign and share the petition, only if you agree. We all need to choose what is right for us.

Please sign and share, share, share.

  1. Will I live, or will I die.
  2. My conventional journey begins.
  3. My conventional journey continues.
  4. Sharing the news.

Disclaimer.

This blog contains my opinions, my journey and some of my research details. It is not in any way a substitute for the readers own medical advisor. I am not a medical Doctor.  I disclaim all responsibility for injury, damage or loss to anyone that reads this and follows any or similar protocols mentioned.

 

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